April 22, 2011
My grand vision for this blog currently is to finish my stories of the beach and reviewing the components of On Caring by year’s end. With my having taken on the role of school board member in a community with a large multi-million dollar budget deficit my time at the computer will be sparse. At least the time I spend at the computer for my own purposes will be rare. Thus while it is my vision, it may not come to be.
I will however note here things in passing that catch my attention. On Tuesday of this week the episode of Parenthood on NBC dealt with a teen being involved in a drunk/drugged driving accident. After the wreck she was taken to hospital. The family gathered together at hospital to await word. I have been at a number of these gatherings being part of a large extended family. (Someday I will talk about the pot luck at the funeral home during one of my family funerals, it is both one of the saddest and most wonderful memories of what family means for me.)
While the Braverman television family awaited word from the surgery on the prodigal teen Amber, Max the child with ASD lost it. He had a complete raging meltdown in the waiting room. Max to the untrained eye, that is someone who doesn't live with Asperger's on a day to day basis, became irrational. The story developed that he had been promised pancakes as a motivator for him to go and wait at the hospital. When the hospital stayed exceeded what he could tolerate he lashed out in a logical but clearly inappropriate manner. Max even implied that whether his cousin Amber died or not should not stop his trip for pancakes because he and his father were not doctors and their presence was therefore of no aid or relevance. Strictly and clinically speaking this was true. Obviously this was viewed as hurtful by all the non-ASD folks in the room.
The character of Adam who in the story is Max’s father struggled with this and with many other issues during the hour. There came a point however when he tried to explain to Max what the gathering in the waiting room had really meant and tried to explain empathy. My eyes filled with tears. The disconnect between what I define as empathy and what my oldest son Primus understands as caring for others was once as wide a gulf as depicted on that show. Eventually Max asks his Dad if he is mad at Max for having Aspergers. I misted up again. I have lived this argument in my own head many, many times.
Time has changed my son. He seems to have reached a point where he has created scripted responses to emotional situations to try and work his way through them. He has learned patience and he has learned to remove himself from situations where he might get caught up by miscues in reading others' emotions. The hope is that the television series will deal with Max’s approach to living in a world of neurotypicals who sail the world by the constellations of emotions.
I guess what I am trying to say is that in the moment when Max asked his Dad “Are you mad at me because I have Aspergers?” I felt the barb wire pull tight around my heart. You try and try to reframe constantly and knowingly work with the situation and with the aspects of who your child is. Still there is always the fear that you are reacting to the condition and not the person. More importantly there has always been the fear that my actions no matter how well intended somehow might be perceived by my son to mean I somehow think less of him because he has Aspergers. This is something that is as far from the truth as it could be. My life and feelings are painted broadly and his are much more nuanced and exacting. I hope we always find ways to bridge our two worlds. I think more than anything that is what Adam is seeking in Parenthood.
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