Wednesday, March 31, 2010
Three things are on my mind this warm spring morning. I note them below.
Songbirds. Arriving downtown a little early today I walked from my bus stop to my favorite coffee shop and then on to my office. If you are ever in Lansing, MI Biggby’s on Ottawa Street is a fine place to meet, mingle and drink coffee, I highly recommend it. The conversation with the way over-educated barristas is worth the price of admission. Anyway, as I travelled my well worn route the air around my path was filled with the sounds of singing songbirds. Songbirds are coming back it seems and it is something to be happy about.
When I was a child growing up in the swamps of southern New Jersey I remember the vibrant song of the birds. I lived across from a gas station. Each day starting first thing in the morning the owner would punctuate his trips to the pump to fill up cars with his take on his favorite songs. While I would hear the owner singing his lungs out, I would also hear the birds providing graceful filigree to that earthy throaty voice. Together they were beautiful. This aural blend remains one of my fondest childhood memories.
Up until about 5-8 years ago I didn’t hear the songbirds very much around my home in my little suburban neighborhood in Michigan. The crows seemed to have driven them out. All I would hear when I headed outside each day was caw caw. The loud insistent almost dinosaur era clamoring of the crows was not very pleasant.
When West Nile virus swept through the area almost all of the crows died off. You would see them in groups of 3 or 4 lying dead on the macadam surface of the street. It was scary. But eventually the fear wore off. Nobody in my neighborhood keeled over from West Nile. But suddenly there were songbirds again, in abundance.
Some crows have returned but the songbirds are still present and still singing at the tops of their little lungs. Today is already bright with the promise of 70+ F temperature here but the voices of song birds trilling in every nook and cranny just makes the day electric.
Autism Awareness. Because I got downtown early I was able to look at the USA Today sitting on a table at my favorite coffee shop. In the Life section there was an article about Songs of the Spectrum. http://www.usatoday.com/news/health/2010-03-31-autismsingsos31_ST_N.htm This is an effort by a parent of an Autism Spectrum child to build awareness and to provide benefit funds for autism efforts. There was a chart included in the article that indicates early autism diagnosis will reduce the cost of autism support and care for a child by 2/3rds over her/his lifetime. The chart also mentioned that screening is possible starting at roughly age two. From personal experience I can tell you there is real truth in this. If you have suspicions about whether a child you know is impacted by autism don’t delay in following up. Primus was not diagnosed until age 12. Having an earlier diagnosis would really have made a significant difference in his educational experience. April is Autism Awareness Month.
Parenthood Rocks. Sticking with the autism storyline Parenthood is showing something that my wife and I have experienced first hand, the involvement of a child with Asperger’s in team sports. Going this route is not for everyone and it does not guarantee a positive or successful result. However in our case it has had meaning and has provided growth that we really wouldn’t have seen otherwise.
In the series Max is on a softball team. He cannot hit, he cannot catch and he feels isolated (or perhaps mistreated is the better word). The father Adam Braverman finds another family member, Max’s cousin Drew that is willing to practice with him and Max. As they practice Max begins to develop some basic skills and seems to enjoy it when he gets the technique needed to make a catch. My hope is that with these skills he can make a connection with one or two of his team mates. It would also make sense to show some other parents reaction. It is amazing the win at all costs mindset that starts at the very earliest level of children’s sports. I digress.
Primus has been playing hockey for 6 or 7 years now. His skill set has through the early years was at the very lowest end of the spectrum for his team. But one thing about his variant of ASD is that he listens with precision to the details of a coach’s instruction. As he has grown he has moved slowly into the mid-pack level of skills for B hockey. More importantly he values his “team”. Maybe Max will follow that route in the storyline.
Primus’s use of the term of team is not another phrase for his friends. He mentally puts them in a box different from people at school and people he interacts with at other settings. But they have a higher value than just classmates to him. Further as the years have gone on he has learned to engage in some locker room conversation. Now mind you he punched someone out this year that criticized his playing but the same kid received similar treatment from a couple of neuro-typicals. More importantly he makes jokes and wants to be in the room with the team without adults being there. This is a major step for a kid with Aspergers.
My hope is that the story line on Parenthood will address some of this. Being on a team for an ASD kid is not easy but sometimes it can provide opportunity for interaction that would never occur otherwise. It is not a cure, a fix and it is definitely not easy. It is not easy for you as a parent watching your kid being outclassed on the field or on the ice. It is not easy for your kid to take the crap for poor play in the dugout or the locker room. But one thing about ASD kids is that they can be determined and focused. They will keep working until they improve and in the end they may find a benefit from the effort that is worth the tough parts of the experience.
Just remember when you have seen one kid with Aspergers, you have seen one kid with Aspergers. Every one of them travels a different route.
Wednesday, March 31, 2010
Saturday, March 27, 2010
Death on the Road
My correspondence with friends has dropped off over the past six months to a year. I hold many regrets about that. So easily I have allowed myself to lose my margin of time for jotting down the note to a dear pal or simply posting a “hey I miss you “e-mail. Surprisingly not everyone has gone this route and I still get e-mails. The other day I got a note from someone I care about greatly, someone I really love because of who they are. (You should read into this that they are a much nicer and much better person than me and I wonder why they keep me as a friend). In response to that little popcorn post I fired off a “write me a real letter and I will respond” note.
Well she did write me a real letter. The letter was a very loving capture of what she felt about the passing of her grandmother. The letter was sweet and warm and tinged with the loss that we all feel at the passing of someone who had been an important part of our lives. There was also a juxtaposition of her life to her grandmother’s. Finally and maybe rhetorically, maybe not she asked me if I had ever watched anyone die. I responded.
I may have missed the mark in my response. Right now I am feeling awkward about my reply. Still what I wrote I really meant. Over the past 36 hours I have kept thinking about what I had written. My response to her beautiful post has been so much on my mind I decided to alter my response letter and post it as this week’s blog entry. Of course I have tried to remove all identifying information pertaining to the writer. Here is the text of my response beginning just after the salutation.
Like you I have watched a person die. In actuality I have seen several people die. In my time on this earth I have seen a bit of death’s spectrum. As you know I am not an ER room nurse or an EMT. My exposure to death has thus not been so high as to make me callous to the event of life’s end. The passings I have seen I remember vividly.
On the one hand I have seen a beloved aunt die. Her family was at her side despite the hour being very late. My wife and I had driven for hours for one last visit. Within five minutes of our arrival she quit fighting and was gone. All the care and compassion a matriarch should be accorded was in full play. Her children and grandchildren nieces and nephews were about the place. Tears of love flowed. The event was filled with real love, compassion and care. While I felt sad her death came at a time appropriate in the grand scheme of things, she was suffering and she had fought the good fight long enough. But when you asked the question of whether I had seen a person die that is not the death I remember. The one I remember I will recount below.
As you know I have faith, but I am not sure my faith is as strong as yours. Despite giving in and responding to an altar call or two, I never felt the electricity of a full and complete knowledge of God as I stood in the front of a church with a pastor’s hand on my head as he prayed for me. The scales didn’t fall off my eyes after being struck blind on the road to Damascus. My journey is one that is continually tested, continually challenged. My faith is tempered by what I have experienced and while I am a Christian, that is I a believer in the Christ and in his red letter affirmations (you know the stuff Jesus is directly attributed to have said) I have real moments of doubt. There are many paths in this life and I do have trouble ascribing that only one opens the door to the fulfillment of God’s love.
I am glad you have peace but I am not sure I will ever have that, at least not in a way that resolves all the mental and philosophical conflicts I try and work through daily. My path to faith is one walked with constant fear and trembling as I set about working out my own salvation. When I read the New Testament I see that the founders of the early church understood that the search for faith is never easy, Philippians 2:12-13.
On actually seeing death I offer the following. Experiencing another’s death is an odd memory for me. The first time I watched someone die was as unexpected as it was ghastly. I was in my second year of law school. The day was a cold sunny Saturday afternoon in March. It was long enough ago that there were no VCRs and cell phones. Both of these facts played a role in the events of that day.
In the days pre-VCR if you wanted to see a “classic” film you had to watch the local film societies’ newspaper adverts to see what was showing at their weekend screenings. Living in downtown Detroit in my 17th floor tenement apartment located in officially blighted neighborhood my nearest film society was run by the Detroit Institute of Arts. In the Friday section of the Free Press there was a listing that on Saturday at 1 p.m. the Detroit Film Society would be showing Robert Altman’s McCabe and Mrs. Miller.
McCabe was an anti-western; it was maybe to only real anti-western. In the film the hero runs a brothel and dies a cowardly death. The audience finds itself rooting for him to shoot the bad guys in the back. Such actions were clearly not the cowboy way. It was a film of its era and the chance to see it on a big screen was a rarity. Having read the Free Press on Friday morning I saw it was showing. As we were having coffee before our morning classes I convinced my friend Andi (Andrea) to go. As I remember it she loved Robert Altman movies about as much as I did. We agreed to meet the next day early, which by our sense of time and calendar was a highly flexible term.
Andi and I met that Saturday morning at the University of Detroit Law School Library. As should be expected, we were running late. What else was new? The law library sits on East Jefferson Avenue near the base of I-75 South as it passes through downtown Detroit. Andi lived on the eastside and I lived downtown so it was the ideal rendezvous. The Detroit Institute of Arts is just a couple of miles north of the school through a warren of urban blight off of I-75. Trying to insure we would make the opening credits we jogged out to Andi’s little bullet shaped Civic.
Her car was the original Honda Civic; it was a two seater and had a steering wheel that was a mile across. We were running late as always and we debated whether we should smoke our joint then before we drove to the movie, in the car on the way to the movie or outside the theatre. We decided to wait. The rationale was that this was Detroit and what city cop in his right mind was going to bust a couple of people for doing a doobie in the Cass corridor? In retrospect it was a far better choice than we ever would have contemplated.
We jumped in the car and Andi drove, actually she drove like a bat out of hell. The Civic proudly wore a bumper sticker that a mutual friend had affixed as a testament to her driving skills which read, “I Break for No Apparent Reason”.
Merging onto I-75 we were headed up to Warren Avenue. From there we were going to work our way to the DIA. Hitting speed in front of the Lafayette Clinic, the Wayne State University mental health facility we were at a solid 70 m.p.h. Andi tapping the steering wheel and me the dash as we sang along to Tom Petty’s “Even the Loser’s Get Lucky Sometime”. We sang out of tune and loud, like was there any other way?
Just as we were hitting the song’s crescendo a body came off the hood of the car in front of us and flew over our Civic bouncing off the car behind us rolling brutally in the roadway. The body of that man is suspended in mind forever passing over the windshield of the Civic. No I didn’t see his face. For the life I me I can’t tell you if he was in pain at that moment. I remember his clothes were gray and he had a jacket on. But when I rewind the movie, and it does come to me late at night more frequently than I would like, it is just the shock of seeing a body there in mid-air that stands out. It is as if the cassette player went silent right then. It was if we had slipped between the light rays of the sun into a moment of unreality. All I can say for sure it is that the man was airborne and twisted in ways not meant to happen in nature.
Wrenching my head around I saw the man’s body rolling down the road. Andi was screaming and in tears. I think she was shouting something like “What was that, did you see that, what was that, what do we do?” I was not mentally there at all, shock perhaps, but my thoughts focused in a couple of seconds and I told her get off at the next exit. I didn’t care if we were in the heart of the ghetto we had to call 911. Andi was crying and I was shaking and sweating as we pulled off. I honestly can’t say what my body was doing right then.
Trying to find a pay phone in a ghetto in 1980 was not an easy task. We rode around through neighborhoods that looked like Sarajevo after the worst of the fighting. Boarded up facades and burnt buildings were everywhere. It took a couple of minutes but eventually we found a phone and put the 911 call in. I still wonder what diseases I picked up off that handset.
It was our mutual thought that we had better go back to see if anyone had helped the poor bastard. I wasn’t sure what I could do I had no first aid training. It wasn’t for voyeurism that we returned, we also thought that the cars who had hit the guy might need witness statements. Even if we were sometimes stoner law students we took our obligations under the law quite seriously. We were witnesses.
After a drive south on surface streets which seemed to take forever (time works funny in dire stress doesn’t it, things just hang there and everything seemingly takes so long), we eventually got on I-75 north again and came back to the spot by the Lafayette Clinic. The police had arrived on scene and an EMT was just getting there.
I don’t know how to refer to the man struck by the car, the victim, the man, the guy in gray so I guess I will just go with the man. When we pulled up the man was lying on the curb and a police man was over him and had a blanket covering him partially. From what I could see he was twitching and bloating up with blood that must have been pooling in the spots where he had taken the body hits from the cars that had struck him. His breathing was noisy, irregular and kind of gurgling maybe. Then the things his muscles and body were doing just stopped and the EMTs didn’t seem to be in a hurry anymore. When they put him on the stretcher there was no sense of urgency. He was gone.
Surely I must have given a statement to the police, but I don’t remember it. I know that the time for the movie came and went and we were still at the roadside. Eventually everything finished up and we left.
We drove over to the Union Street bar on Woodward. I am pretty sure we didn’t smoke the joint it just didn’t match what we had experienced. Instead we drank shots of nasty burning liquors chasing them down with beers. We drank a shitload of them. And we cried and we talked about how fucked up watching the guy twitching by the road was. I think even though we weren’t a couple we went back to my apartment and had hard nasty sex and even that didn’t feel good.
I watched the paper for days to see if there was a blurb on what happened. Detroit however is a big city and one vehicular death doesn’t merit much mention. In the end I think I found out the guy was actually a patient at the mental clinic and had been released that morning. Nobody could really come up with a reason why he was trying to cross the eight lanes of I-75 on foot trying apparently to get back to the clinic from the other side of the highway. He had not been identified as a suicide risk. No one knew the why.
Did the experience give me faith or challenge my faith? It didn’t give me faith for sure, but I don’t think it really impacted on my faith. Watching that man die did something to me that has happened only a couple of times in my life. It focused me on life and its difference from not life. It made the world seem a little more real for a couple of days. Colors were a little clearer. The air felt a little more real on my skin. I felt forced to be in the moment and to be alive. The victim’s death was not one that seemed anything but mundanely horrific, still to me it showed the world was anything but mundane. Eventually that feeling faded.
When I was almost killed in an automobile accident the feeling came back. When I went on a luge run in Norway the feeling came back. No matter how I tried to hold onto that feeling it faded. But I have the wisps of the memory from those events to remind life matters.
Watching a loved one die is very rough indeed. This is especially true when the death is slow and when bits of that person’s life are stolen incrementally. Alzheimer’s is one of the cruelest of death’s emissaries. It is not alone. I have watched friends die of AIDS and that in many ways was the worst from my perspective. No matter how your rational mind tries to process the death it is filled with pain and conflict. There are tears that should have been cried but remain locked away in all of us.
I have known people who possess the selfless nature you describe when talking about your grandmother. If such a life of love and sacrifice was her choice or a choice she came to embrace then it can serve as a point of reference for how your life might evolve. Still you really don’t gain some greater awareness or share some incredible value by living such an almost monastic life if it is not an appropriate choice for you. “No one else can give me the meaning of my life; it is something I alone can make. The meaning is not something predetermined which simply unfolds, I help both to create it and to discover it, and this is a continuing process, not a once and for all.” Milton Mayeroff, On Caring, p 62. Being other focused is fine but you have to be you for it to matter.
In one larger section of the above book Mayeroff takes time to talk about what he feels are critical components of caring; they are trust, honesty and patience. This quote seems relevant to what your were talking about.
Courage is also present in going into the unknown. By following the lead of the subject matter or the direction of the growing child, I have no guarantee where it will all end or in what unfamiliar situations I will find myself. The security of familiar landmarks is gone and I cannot anticipate fully who or what the other will become or who I will become. This is the courage of the artist who leaves the fashions of the day to go his own way and in so doing comes to find himself and be himself. Such courage is not blind: it is informed by insight from past experiences, and it is open and sensitive to the present. Trust in the other to grow and in my own ability to care gives me the courage to go into the unknown, but it is also true that without the courage to go into the unknown such trust would be impossible. And clearly, the greater the sense of going into the unknown, the more courage is called for in caring.
The total subjugation and suppression of who you are or who you have been does not benefit anyone you care about or the world. If you grandmother’s selflessness came from her courage and not from stereotyped sex roles imposed by the society and faith of the time many decades ago when she was young then following that path may make sense. If her role and her apparent selflessness were imposed on her from outside, then maybe it does not make sense for you at all.
We all change. Our musical tastes may shift radically or our interest in music may die out altogether. Our friends will come and go. The space we occupy in terms of dwelling and family will vary. But the key is to have the courage to face these things and have the focus to work toward the meaning of your own life in fear and trembling, if need be.
Well she did write me a real letter. The letter was a very loving capture of what she felt about the passing of her grandmother. The letter was sweet and warm and tinged with the loss that we all feel at the passing of someone who had been an important part of our lives. There was also a juxtaposition of her life to her grandmother’s. Finally and maybe rhetorically, maybe not she asked me if I had ever watched anyone die. I responded.
I may have missed the mark in my response. Right now I am feeling awkward about my reply. Still what I wrote I really meant. Over the past 36 hours I have kept thinking about what I had written. My response to her beautiful post has been so much on my mind I decided to alter my response letter and post it as this week’s blog entry. Of course I have tried to remove all identifying information pertaining to the writer. Here is the text of my response beginning just after the salutation.
Like you I have watched a person die. In actuality I have seen several people die. In my time on this earth I have seen a bit of death’s spectrum. As you know I am not an ER room nurse or an EMT. My exposure to death has thus not been so high as to make me callous to the event of life’s end. The passings I have seen I remember vividly.
On the one hand I have seen a beloved aunt die. Her family was at her side despite the hour being very late. My wife and I had driven for hours for one last visit. Within five minutes of our arrival she quit fighting and was gone. All the care and compassion a matriarch should be accorded was in full play. Her children and grandchildren nieces and nephews were about the place. Tears of love flowed. The event was filled with real love, compassion and care. While I felt sad her death came at a time appropriate in the grand scheme of things, she was suffering and she had fought the good fight long enough. But when you asked the question of whether I had seen a person die that is not the death I remember. The one I remember I will recount below.
As you know I have faith, but I am not sure my faith is as strong as yours. Despite giving in and responding to an altar call or two, I never felt the electricity of a full and complete knowledge of God as I stood in the front of a church with a pastor’s hand on my head as he prayed for me. The scales didn’t fall off my eyes after being struck blind on the road to Damascus. My journey is one that is continually tested, continually challenged. My faith is tempered by what I have experienced and while I am a Christian, that is I a believer in the Christ and in his red letter affirmations (you know the stuff Jesus is directly attributed to have said) I have real moments of doubt. There are many paths in this life and I do have trouble ascribing that only one opens the door to the fulfillment of God’s love.
I am glad you have peace but I am not sure I will ever have that, at least not in a way that resolves all the mental and philosophical conflicts I try and work through daily. My path to faith is one walked with constant fear and trembling as I set about working out my own salvation. When I read the New Testament I see that the founders of the early church understood that the search for faith is never easy, Philippians 2:12-13.
On actually seeing death I offer the following. Experiencing another’s death is an odd memory for me. The first time I watched someone die was as unexpected as it was ghastly. I was in my second year of law school. The day was a cold sunny Saturday afternoon in March. It was long enough ago that there were no VCRs and cell phones. Both of these facts played a role in the events of that day.
In the days pre-VCR if you wanted to see a “classic” film you had to watch the local film societies’ newspaper adverts to see what was showing at their weekend screenings. Living in downtown Detroit in my 17th floor tenement apartment located in officially blighted neighborhood my nearest film society was run by the Detroit Institute of Arts. In the Friday section of the Free Press there was a listing that on Saturday at 1 p.m. the Detroit Film Society would be showing Robert Altman’s McCabe and Mrs. Miller.
McCabe was an anti-western; it was maybe to only real anti-western. In the film the hero runs a brothel and dies a cowardly death. The audience finds itself rooting for him to shoot the bad guys in the back. Such actions were clearly not the cowboy way. It was a film of its era and the chance to see it on a big screen was a rarity. Having read the Free Press on Friday morning I saw it was showing. As we were having coffee before our morning classes I convinced my friend Andi (Andrea) to go. As I remember it she loved Robert Altman movies about as much as I did. We agreed to meet the next day early, which by our sense of time and calendar was a highly flexible term.
Andi and I met that Saturday morning at the University of Detroit Law School Library. As should be expected, we were running late. What else was new? The law library sits on East Jefferson Avenue near the base of I-75 South as it passes through downtown Detroit. Andi lived on the eastside and I lived downtown so it was the ideal rendezvous. The Detroit Institute of Arts is just a couple of miles north of the school through a warren of urban blight off of I-75. Trying to insure we would make the opening credits we jogged out to Andi’s little bullet shaped Civic.
Her car was the original Honda Civic; it was a two seater and had a steering wheel that was a mile across. We were running late as always and we debated whether we should smoke our joint then before we drove to the movie, in the car on the way to the movie or outside the theatre. We decided to wait. The rationale was that this was Detroit and what city cop in his right mind was going to bust a couple of people for doing a doobie in the Cass corridor? In retrospect it was a far better choice than we ever would have contemplated.
We jumped in the car and Andi drove, actually she drove like a bat out of hell. The Civic proudly wore a bumper sticker that a mutual friend had affixed as a testament to her driving skills which read, “I Break for No Apparent Reason”.
Merging onto I-75 we were headed up to Warren Avenue. From there we were going to work our way to the DIA. Hitting speed in front of the Lafayette Clinic, the Wayne State University mental health facility we were at a solid 70 m.p.h. Andi tapping the steering wheel and me the dash as we sang along to Tom Petty’s “Even the Loser’s Get Lucky Sometime”. We sang out of tune and loud, like was there any other way?
Just as we were hitting the song’s crescendo a body came off the hood of the car in front of us and flew over our Civic bouncing off the car behind us rolling brutally in the roadway. The body of that man is suspended in mind forever passing over the windshield of the Civic. No I didn’t see his face. For the life I me I can’t tell you if he was in pain at that moment. I remember his clothes were gray and he had a jacket on. But when I rewind the movie, and it does come to me late at night more frequently than I would like, it is just the shock of seeing a body there in mid-air that stands out. It is as if the cassette player went silent right then. It was if we had slipped between the light rays of the sun into a moment of unreality. All I can say for sure it is that the man was airborne and twisted in ways not meant to happen in nature.
Wrenching my head around I saw the man’s body rolling down the road. Andi was screaming and in tears. I think she was shouting something like “What was that, did you see that, what was that, what do we do?” I was not mentally there at all, shock perhaps, but my thoughts focused in a couple of seconds and I told her get off at the next exit. I didn’t care if we were in the heart of the ghetto we had to call 911. Andi was crying and I was shaking and sweating as we pulled off. I honestly can’t say what my body was doing right then.
Trying to find a pay phone in a ghetto in 1980 was not an easy task. We rode around through neighborhoods that looked like Sarajevo after the worst of the fighting. Boarded up facades and burnt buildings were everywhere. It took a couple of minutes but eventually we found a phone and put the 911 call in. I still wonder what diseases I picked up off that handset.
It was our mutual thought that we had better go back to see if anyone had helped the poor bastard. I wasn’t sure what I could do I had no first aid training. It wasn’t for voyeurism that we returned, we also thought that the cars who had hit the guy might need witness statements. Even if we were sometimes stoner law students we took our obligations under the law quite seriously. We were witnesses.
After a drive south on surface streets which seemed to take forever (time works funny in dire stress doesn’t it, things just hang there and everything seemingly takes so long), we eventually got on I-75 north again and came back to the spot by the Lafayette Clinic. The police had arrived on scene and an EMT was just getting there.
I don’t know how to refer to the man struck by the car, the victim, the man, the guy in gray so I guess I will just go with the man. When we pulled up the man was lying on the curb and a police man was over him and had a blanket covering him partially. From what I could see he was twitching and bloating up with blood that must have been pooling in the spots where he had taken the body hits from the cars that had struck him. His breathing was noisy, irregular and kind of gurgling maybe. Then the things his muscles and body were doing just stopped and the EMTs didn’t seem to be in a hurry anymore. When they put him on the stretcher there was no sense of urgency. He was gone.
Surely I must have given a statement to the police, but I don’t remember it. I know that the time for the movie came and went and we were still at the roadside. Eventually everything finished up and we left.
We drove over to the Union Street bar on Woodward. I am pretty sure we didn’t smoke the joint it just didn’t match what we had experienced. Instead we drank shots of nasty burning liquors chasing them down with beers. We drank a shitload of them. And we cried and we talked about how fucked up watching the guy twitching by the road was. I think even though we weren’t a couple we went back to my apartment and had hard nasty sex and even that didn’t feel good.
I watched the paper for days to see if there was a blurb on what happened. Detroit however is a big city and one vehicular death doesn’t merit much mention. In the end I think I found out the guy was actually a patient at the mental clinic and had been released that morning. Nobody could really come up with a reason why he was trying to cross the eight lanes of I-75 on foot trying apparently to get back to the clinic from the other side of the highway. He had not been identified as a suicide risk. No one knew the why.
Did the experience give me faith or challenge my faith? It didn’t give me faith for sure, but I don’t think it really impacted on my faith. Watching that man die did something to me that has happened only a couple of times in my life. It focused me on life and its difference from not life. It made the world seem a little more real for a couple of days. Colors were a little clearer. The air felt a little more real on my skin. I felt forced to be in the moment and to be alive. The victim’s death was not one that seemed anything but mundanely horrific, still to me it showed the world was anything but mundane. Eventually that feeling faded.
When I was almost killed in an automobile accident the feeling came back. When I went on a luge run in Norway the feeling came back. No matter how I tried to hold onto that feeling it faded. But I have the wisps of the memory from those events to remind life matters.
Watching a loved one die is very rough indeed. This is especially true when the death is slow and when bits of that person’s life are stolen incrementally. Alzheimer’s is one of the cruelest of death’s emissaries. It is not alone. I have watched friends die of AIDS and that in many ways was the worst from my perspective. No matter how your rational mind tries to process the death it is filled with pain and conflict. There are tears that should have been cried but remain locked away in all of us.
I have known people who possess the selfless nature you describe when talking about your grandmother. If such a life of love and sacrifice was her choice or a choice she came to embrace then it can serve as a point of reference for how your life might evolve. Still you really don’t gain some greater awareness or share some incredible value by living such an almost monastic life if it is not an appropriate choice for you. “No one else can give me the meaning of my life; it is something I alone can make. The meaning is not something predetermined which simply unfolds, I help both to create it and to discover it, and this is a continuing process, not a once and for all.” Milton Mayeroff, On Caring, p 62. Being other focused is fine but you have to be you for it to matter.
In one larger section of the above book Mayeroff takes time to talk about what he feels are critical components of caring; they are trust, honesty and patience. This quote seems relevant to what your were talking about.
Courage is also present in going into the unknown. By following the lead of the subject matter or the direction of the growing child, I have no guarantee where it will all end or in what unfamiliar situations I will find myself. The security of familiar landmarks is gone and I cannot anticipate fully who or what the other will become or who I will become. This is the courage of the artist who leaves the fashions of the day to go his own way and in so doing comes to find himself and be himself. Such courage is not blind: it is informed by insight from past experiences, and it is open and sensitive to the present. Trust in the other to grow and in my own ability to care gives me the courage to go into the unknown, but it is also true that without the courage to go into the unknown such trust would be impossible. And clearly, the greater the sense of going into the unknown, the more courage is called for in caring.
The total subjugation and suppression of who you are or who you have been does not benefit anyone you care about or the world. If you grandmother’s selflessness came from her courage and not from stereotyped sex roles imposed by the society and faith of the time many decades ago when she was young then following that path may make sense. If her role and her apparent selflessness were imposed on her from outside, then maybe it does not make sense for you at all.
We all change. Our musical tastes may shift radically or our interest in music may die out altogether. Our friends will come and go. The space we occupy in terms of dwelling and family will vary. But the key is to have the courage to face these things and have the focus to work toward the meaning of your own life in fear and trembling, if need be.
Daylight on the Morning Fields
Sometimes when I am driving about I pick up a mix disk I made a long time ago and throw it into the CD player. Today as I was on my way to breakfast before a day of errands I threw one of those disks in. Bruce Cockburn starting singing,
Don't the hours grow shorter as the days go by,
You never get to stop and open your eyes
One day you're waiting for the sky to fall
And next you're dazzled by the beauty of it all
When you're lovers in a dangerous time
Lovers in a dangerous time
Yeah sometimes a lyric will just blast beyond the mundane questions. Before I heard this I was thinking about where I had stashed my shovel at end of last fall. Suddenly I was looking out the window at the promise of spring and the living awakening things that surrounded me. A good lyric will do that for you. Enjoy. PS You don't have to listen to the post performance banter but it is interesting.
Thursday, March 25, 2010
Why?
The question of suffering is one that I have not pondered much. Mostly I have taken the position that suffering just is. Children die of leukemia. Populations of people are subjected to genocide in death camps, dark jungles and other hostile environments. My feeling was that there is no why, again it just is.
Recently I have been reading a book dealing with the cabbalists of pre-inquisition Spain. Starting around the 10th or 11th century it seems they began focusing on the issue of suffering, especially the suffering of the innocent children. While comfortable by standards of the world at that time, disease was omnipresent and hope for relief or cure of the afflicted was limited. An intellectual looking at her world could easy wonder why.
As the next several hundred years evolved the discussion of immense pain and suffering moved from theoretical to personal. This followed as the inquisition first in Spain and then in Portugal inflicted an early version of the final solution on the Jewish community of which the cabbalists were a part. In the period of the Inquisition the switch from tolerance to torture came quickly, it did not take a generation to pass to become the most unholy of purportedly holy exercises.
The rapid change for these people from secure to fleeing expatriates with no destination made me start thinking. While I may be comfortable, more or less in this downward economy, it can change at a moment’s notice. Suffering on a grand scale could become real tomorrow. When you let your mind go down those threads of logic it isn’t a great leap to the big questions, the imponderables, like why is there suffering.
Recently I have been reading a book dealing with the cabbalists of pre-inquisition Spain. Starting around the 10th or 11th century it seems they began focusing on the issue of suffering, especially the suffering of the innocent children. While comfortable by standards of the world at that time, disease was omnipresent and hope for relief or cure of the afflicted was limited. An intellectual looking at her world could easy wonder why.
As the next several hundred years evolved the discussion of immense pain and suffering moved from theoretical to personal. This followed as the inquisition first in Spain and then in Portugal inflicted an early version of the final solution on the Jewish community of which the cabbalists were a part. In the period of the Inquisition the switch from tolerance to torture came quickly, it did not take a generation to pass to become the most unholy of purportedly holy exercises.
The rapid change for these people from secure to fleeing expatriates with no destination made me start thinking. While I may be comfortable, more or less in this downward economy, it can change at a moment’s notice. Suffering on a grand scale could become real tomorrow. When you let your mind go down those threads of logic it isn’t a great leap to the big questions, the imponderables, like why is there suffering.
Wednesday, March 24, 2010
Empty Bells
Wednesday, March 24, 2010
We are constantly formulating statements for the present. These are smothered in language and are meaningless and inconclusive parts of a debate that may or may not matter in the long run. Nobody listens to anything except when it agrees with their own prejudice.
Merton, 03-02-66 Journal (Paraphrased)
Sometimes I think I should just live detached from the political world. I dream from time to time of uncoupling the TV and the internet and just reading books for information. Books to be read must be at least 25 years and thus by their mere continued presence on the book shelf at the public library show their worth. Oh, they must be dog eared and smudged showing active reading by previous patrons. If a book is of some age and is still being read then maybe it does have worth. Nonfiction of course is preferred we are talking about ideas here. However some fiction will be considered. This would be because as is well known some ideas were so powerful their statement had to be crafted in fiction to allow their dissemination without the author being impaled for being a heretic.
We are constantly formulating statements for the present. These are smothered in language and are meaningless and inconclusive parts of a debate that may or may not matter in the long run. Nobody listens to anything except when it agrees with their own prejudice.
Merton, 03-02-66 Journal (Paraphrased)
Sometimes I think I should just live detached from the political world. I dream from time to time of uncoupling the TV and the internet and just reading books for information. Books to be read must be at least 25 years and thus by their mere continued presence on the book shelf at the public library show their worth. Oh, they must be dog eared and smudged showing active reading by previous patrons. If a book is of some age and is still being read then maybe it does have worth. Nonfiction of course is preferred we are talking about ideas here. However some fiction will be considered. This would be because as is well known some ideas were so powerful their statement had to be crafted in fiction to allow their dissemination without the author being impaled for being a heretic.
Thursday, March 18, 2010
Aspergers and the Issue of Labels
Posting about Asperger’s in any manner brings out a variety of responses. Luckily none of my readers take the Dennis Leary approach of using broadside humor to obscure the reality of what kids who meet the criteria are living with. Unlike many other people I don’t have an issue with Leary. He is using Asperger’s the same way other comics use obesity, i.e. it is merely fodder for cheap shot visceral gags. Not all obesity is the result of a failure of will or personal character either. However, I am glad that the people who respond to me are thoughtful and offer measured commentary.
In that regards I got an e-mail in response to my posting on Parenthood. I have edited it just a little so that the author is not readily identifiable. But I think her e-mail merited more that just a hidden interchange between she and I. The issues she raised are some of the key aspects of the debate on Asperger’s. Here is the e-mail and also my response.
Dear G,
I wanted to respond to your blog but I didn't want to sign up for a Google account, so since I know the author personally I thought I'd just share my thoughts with you. I hope nothing I say will offend you as I do not have any first hand knowledge of Asperger's Syndrome except that I am a teacher familiar with a range of conditions. My own child had an IEP all throughout her school years. She was/is a stutterer and while it is dramatically different than what you are dealing with, I know the heartache a parent can have when their child is not "like everyone else."
Since this blog entry was related to a TV show, I was reminded of another show I recently watched, some doctor show where the dad was in denial about his 11 year old daughter’s schizophrenia. He felt like he caused it. I immediately go there whenever my children have any kind of flaw. I assume they must have gotten it from me.
I wonder if there has ever been any studies on the parents of Asperger Syndrome kids and any connection to high intelligence. I always suspected you were pretty smart. (They told us in our teacher classes that Bill Gates had Aspergers).
Aspergers Syndrome was never even a diagnosis back when we were kids was it? And if it wasn't and kids still had it but it wasn't diagnosed as such, didn't the kids simply grow up and get on with life the best they could. Wasn’t it kind of like before ADD/ADHD kids were diagnosed and put on meds?
I'm not trying to minimize your son's condition in anyway but sometimes I think that maybe labeling kids with these diagnoses might make the parents and the kids feel worse. These names are so powerful. As a teacher I see kids with psychological and physical limitations but I can tell you that I have always tried to see the child as a person and not as their condition and hopefully your son's teachers can do that as well.
Bea,
Dear B,
I would not be offended by anything you might say in a considered discussion. I understand the label issue you have raised and it is one we considered long and hard before getting involved with the whole machine of psychologists/ASD consultants, diagnoses, etc.
In a way we were forced to make the choice we did due to the strains on public education here in Michigan. Without a diagnosis the chances were quite strong that Primus would simply be considered a troubled child and shunted to the edge of the mainstream. It was already happening when we took action. We know and his SAT scores show (he scored median for college bound high school seniors when he took that test in seventh grade) he is a bright kid.
I make the above comment about being shunted aside without reservations as to the accuracy of the statement. Primus had begun demonstrating very clear and evident ASD traits in the second grade. However despite what was supposed to be an intervention with a school social worker (who I have since been told had been trained on ASD issues) not a word was said to us about larger issues beyond shyness that might exist for him.
The intervention which was ostensibly to try and aid him building social connections, something it was evident he did not care about. The intervention brought out no referral or suggestion for an evaluation for a condition like ASD. Other issues tied to the disorder were clearly evident at that time. A review of our notes from past parent teacher conferences show that symptoms were being referenced by his teachers that nobody in the school social work/psychologists office thought to tie together.
Every one in the system was more than happy to leave him to fend for himself despite problems with auditory stimulus, limitations with fine motor skill function, extreme clumsiness and grand scale social ineptness. I have since had contact with others in the district that have alerted me that become of economics involved in working with disabilities the schools do not want to find a diagnosis of Aspergers if it can at all be avoided; it is costly.
The way we became aware of ASD was though my wife. One day as my spouse who works at Michigan State University for the Dean of one of the colleges was sorting through prof-net queries (queries seeking thoughts on scientific questions sent out to universities all over the place) to forward on to different faculty she came upon one researcher who was seeking learned comments on why the Aspergers syndrome in boys was growing at such a rapid rate. Wondering what Aspergers was she then looked up the parameters of the diagnosis and brought it to me. Looking at what she found and how closely it aligned with our son’s behaviors I agreed we should get him evaluated. The psychologist we eventually found told us he hit the diagnosis on all measures.
We then called the school and asked to set up an evaluation for an IEP. There response was that they would contact us at a later time. We waited and we waited. At that point I did my legal research and figured out that without a written demand the school would not have to act. Post haste I sent the demand letter that sets the time limits for conducting the review. It is reasonably certain he school would not have moved forward without that little certified letter. When they did the review not a single drafter of the seven reports the school district created did anything other than acknowledge the condition.
Since the IEP has been in place we have been able to deal with issues that would have caused Primus endless grief and bad grades in the past. One teacher last year insisted on giving him assignments that repeatedly called for him to place himself in the shoes of another and write about their emotions. Duh, we kept writing her e-mails indicating that Aspergers kids are not tied into this level of emotion so as to be able to write at length on issues of sympathy and empathy. Without the intervention of the advocate the teacher was hell bent on flunking him because he would not do this kind of work. We asked the teacher if he could do technical reports or more straightforward book reviews before getting the advocate involved. We were rebuffed and she was having none of it. The advocate then stepped in and took over and created the writing assignments.
In our day in school, in our more rural than not environment, a good caring teacher could read these differences in children and work out a way to bring along a kid who had special needs and unique talents to a point that their life would matter. In a urban environment where the curriculum is driven by the no test not taken standard there is no margin that will allow a teacher to do that kind of thing. Without the club that the label is and without the sanctions that follow from not following an IEP my child would have been written off as a troubled and troublesome ass.
Forgive me if I sound a little hostile toward my district the experience has truly been a mixed bag. I have worked with some very good people in our system here. However I think the state of education in Michigan is such that economics drive decisions about child welfare. It is in every administrator’s best interest to avoid the costs associated with IEPs.
You mention the comment I have heard often about why there is such prevalence now of this disorder as opposed to when we were in school. Two or three things come to mind. One is that with the growth of psychological and the empirical studies of behavior we have broken down that much larger class of behaviors that we used to define as “different” behaviors. We can separate things out that used to be lumped together. Second I believe that our environment has impacted us in ways that with the more concentrated toxicity manifests more readily. Hey I have heard you say in our posts, that you believe there is something in the Delaware Valley that causes physiological issues. You had the onset of your illness in your twenties. I had prostate cancer at 50 which is really young for that malady to show up. Do I blame the DuPont stench, well maybe. Could the crap we inhaled as teens have impacted our genes and cells so that it has altered the next generation, well definitely maybe.
I am not an advocate here for anyone but my son. But what I know is that in our case the label has helped more than hurt.
There is a point to your comments. It is clear that you care for kids in your charge and other kids dealing with the academic process. I am sure every single day you are engaged in a balancing act with regard to each child you interact with. With all the labels and programs and requirements sometimes you wish it could be resolved in a simpler more holistic way. Me too. But our world is not the world we lived in as kids when a look from a seasoned gym teacher would stop a kid dead in his tracks or a caring history teacher would pull you aside and work with you.
Our society as a whole outside of engineering doesn't have places for the socially inept but technically skilled anymore. We are too wired a world for that. With Facebook and cameras on every phone the awkward are at risk. I digress.
Sincerely,
G
In that regards I got an e-mail in response to my posting on Parenthood. I have edited it just a little so that the author is not readily identifiable. But I think her e-mail merited more that just a hidden interchange between she and I. The issues she raised are some of the key aspects of the debate on Asperger’s. Here is the e-mail and also my response.
Dear G,
I wanted to respond to your blog but I didn't want to sign up for a Google account, so since I know the author personally I thought I'd just share my thoughts with you. I hope nothing I say will offend you as I do not have any first hand knowledge of Asperger's Syndrome except that I am a teacher familiar with a range of conditions. My own child had an IEP all throughout her school years. She was/is a stutterer and while it is dramatically different than what you are dealing with, I know the heartache a parent can have when their child is not "like everyone else."
Since this blog entry was related to a TV show, I was reminded of another show I recently watched, some doctor show where the dad was in denial about his 11 year old daughter’s schizophrenia. He felt like he caused it. I immediately go there whenever my children have any kind of flaw. I assume they must have gotten it from me.
I wonder if there has ever been any studies on the parents of Asperger Syndrome kids and any connection to high intelligence. I always suspected you were pretty smart. (They told us in our teacher classes that Bill Gates had Aspergers).
Aspergers Syndrome was never even a diagnosis back when we were kids was it? And if it wasn't and kids still had it but it wasn't diagnosed as such, didn't the kids simply grow up and get on with life the best they could. Wasn’t it kind of like before ADD/ADHD kids were diagnosed and put on meds?
I'm not trying to minimize your son's condition in anyway but sometimes I think that maybe labeling kids with these diagnoses might make the parents and the kids feel worse. These names are so powerful. As a teacher I see kids with psychological and physical limitations but I can tell you that I have always tried to see the child as a person and not as their condition and hopefully your son's teachers can do that as well.
Bea,
Dear B,
I would not be offended by anything you might say in a considered discussion. I understand the label issue you have raised and it is one we considered long and hard before getting involved with the whole machine of psychologists/ASD consultants, diagnoses, etc.
In a way we were forced to make the choice we did due to the strains on public education here in Michigan. Without a diagnosis the chances were quite strong that Primus would simply be considered a troubled child and shunted to the edge of the mainstream. It was already happening when we took action. We know and his SAT scores show (he scored median for college bound high school seniors when he took that test in seventh grade) he is a bright kid.
I make the above comment about being shunted aside without reservations as to the accuracy of the statement. Primus had begun demonstrating very clear and evident ASD traits in the second grade. However despite what was supposed to be an intervention with a school social worker (who I have since been told had been trained on ASD issues) not a word was said to us about larger issues beyond shyness that might exist for him.
The intervention which was ostensibly to try and aid him building social connections, something it was evident he did not care about. The intervention brought out no referral or suggestion for an evaluation for a condition like ASD. Other issues tied to the disorder were clearly evident at that time. A review of our notes from past parent teacher conferences show that symptoms were being referenced by his teachers that nobody in the school social work/psychologists office thought to tie together.
Every one in the system was more than happy to leave him to fend for himself despite problems with auditory stimulus, limitations with fine motor skill function, extreme clumsiness and grand scale social ineptness. I have since had contact with others in the district that have alerted me that become of economics involved in working with disabilities the schools do not want to find a diagnosis of Aspergers if it can at all be avoided; it is costly.
The way we became aware of ASD was though my wife. One day as my spouse who works at Michigan State University for the Dean of one of the colleges was sorting through prof-net queries (queries seeking thoughts on scientific questions sent out to universities all over the place) to forward on to different faculty she came upon one researcher who was seeking learned comments on why the Aspergers syndrome in boys was growing at such a rapid rate. Wondering what Aspergers was she then looked up the parameters of the diagnosis and brought it to me. Looking at what she found and how closely it aligned with our son’s behaviors I agreed we should get him evaluated. The psychologist we eventually found told us he hit the diagnosis on all measures.
We then called the school and asked to set up an evaluation for an IEP. There response was that they would contact us at a later time. We waited and we waited. At that point I did my legal research and figured out that without a written demand the school would not have to act. Post haste I sent the demand letter that sets the time limits for conducting the review. It is reasonably certain he school would not have moved forward without that little certified letter. When they did the review not a single drafter of the seven reports the school district created did anything other than acknowledge the condition.
Since the IEP has been in place we have been able to deal with issues that would have caused Primus endless grief and bad grades in the past. One teacher last year insisted on giving him assignments that repeatedly called for him to place himself in the shoes of another and write about their emotions. Duh, we kept writing her e-mails indicating that Aspergers kids are not tied into this level of emotion so as to be able to write at length on issues of sympathy and empathy. Without the intervention of the advocate the teacher was hell bent on flunking him because he would not do this kind of work. We asked the teacher if he could do technical reports or more straightforward book reviews before getting the advocate involved. We were rebuffed and she was having none of it. The advocate then stepped in and took over and created the writing assignments.
In our day in school, in our more rural than not environment, a good caring teacher could read these differences in children and work out a way to bring along a kid who had special needs and unique talents to a point that their life would matter. In a urban environment where the curriculum is driven by the no test not taken standard there is no margin that will allow a teacher to do that kind of thing. Without the club that the label is and without the sanctions that follow from not following an IEP my child would have been written off as a troubled and troublesome ass.
Forgive me if I sound a little hostile toward my district the experience has truly been a mixed bag. I have worked with some very good people in our system here. However I think the state of education in Michigan is such that economics drive decisions about child welfare. It is in every administrator’s best interest to avoid the costs associated with IEPs.
You mention the comment I have heard often about why there is such prevalence now of this disorder as opposed to when we were in school. Two or three things come to mind. One is that with the growth of psychological and the empirical studies of behavior we have broken down that much larger class of behaviors that we used to define as “different” behaviors. We can separate things out that used to be lumped together. Second I believe that our environment has impacted us in ways that with the more concentrated toxicity manifests more readily. Hey I have heard you say in our posts, that you believe there is something in the Delaware Valley that causes physiological issues. You had the onset of your illness in your twenties. I had prostate cancer at 50 which is really young for that malady to show up. Do I blame the DuPont stench, well maybe. Could the crap we inhaled as teens have impacted our genes and cells so that it has altered the next generation, well definitely maybe.
I am not an advocate here for anyone but my son. But what I know is that in our case the label has helped more than hurt.
There is a point to your comments. It is clear that you care for kids in your charge and other kids dealing with the academic process. I am sure every single day you are engaged in a balancing act with regard to each child you interact with. With all the labels and programs and requirements sometimes you wish it could be resolved in a simpler more holistic way. Me too. But our world is not the world we lived in as kids when a look from a seasoned gym teacher would stop a kid dead in his tracks or a caring history teacher would pull you aside and work with you.
Our society as a whole outside of engineering doesn't have places for the socially inept but technically skilled anymore. We are too wired a world for that. With Facebook and cameras on every phone the awkward are at risk. I digress.
Sincerely,
G
Wednesday, March 17, 2010
Light
Light fades on the worn brick of the chimney I see out my window.
The weathering of the blocks does not matter
Nor does aging peeling paint
Nor the bird perched atop the flue cap
A wing flaps now and now again
Fading light golden and warm
Fading light the glorious crown of a premature spring day
Fading light golden and precious
Light now fading is what matters in this narrow view
I hold of spring’s reality
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